Tuesday, September 29, 2009

Summer/Fall 2009

Hello -
This was a restful and rainy summer. Michael was not well for most of the days. He had his vaccines and then ran fevers for most of the rest of summer. Instead of taking bigger trips we took short day trips and then stayed home for the next few days. Michael and Sean were able to see a few neat things despite having health issues.

We ended the summer with a check-in day at MGH. Things looked "interesting" and patterns had clearly developed in terms of Michael's fevers and mouth blisters. The Drs are still thinking about more testing but needed to wait due to other issues. During this trip Michael was diagnosed with a sinus infection - he probably had it most of the summer. At least he would start treatment before school started.

Michael started kindergarten and loves it - the kids, the teachers, the lessons! The days took a lot out of him and he got sick. I think he actually was getting sick before school even started - but who knows. School has been great and very supportive of Michael's situation. We've almost finished the six weeks of antibiotics - yeah! We will return to MGH for a few visits all in one day and then do all testing at one time which should put less stress on Michael.

Michael continues to do weekly Sub-Q treatments at home. These take about 2 1/2 hours total time but have made a huge difference in our lives. Michael doesn't really like the "pokey tubes" but knows that with this medicine he is healthier.

In order to build endurance and strength Michael started Tae Kwon Do this June. He takes class - sometimes the whole class and sometimes he drops out. Lately he has been completing the entire class which is 60 minutes. Michael earned his very first, blue stripe for his white belt and was thrilled! He has his own techniques but seems to be doing just fine.